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Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them ebay spanish ebook book page Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them full version original acquire book look
Anonymous 7 months ago Extremely moving and informativeA work of narrative nonfiction in the tradition of the The Immortal Life of Henrietta Lacks, Mercies in Disguise is the story of a family that took matters into its own hands when the medical world abandoned themKolata also examines a host of intractable ethical issues associated with the disease: Should individuals be tested to determine whether, sometime in the future, they will fall victim to the flaw in their genome, knowing that no palliative treatment is possible? Should embryos be genetically tested and those with the variant gene discarded? The family Kolata follows is devoutly Southern Baptist, which provides the opportunity to consider the myriad ways religion and science interact in such complex situationsTell us what you thinkSign up to follow, and well e-mail you free updates as theyre published
.more flag Like see review Photo In Mercies in Disguise, Kolata, a veteran science writer for The Times, tells the story of the Baxleys, longstanding pillars of Hartsville, S.CThis disease relatively unheard of, is transmitted genetically and though it is found out many years after the fact, this disease had taken the life of many members of the Baxter familyThe details of the disease, the journey to understanding, and the life the Baxley's must lead once they find out the truth are laid out in depthRelated Coverage Why Talk to a Reporter? Especially about Something Difficult and Personal? MARCH 20, 2017 Buy Mercies in Disguise: A Story of Hope, a Familys Genetic Destiny, and the Science That Rescued Them Gina Kolata We earn an affiliate commission with each book purchase, which helps support our journalism at The New York TimesThe Baxley family has suffered from this neurodegenerative disease with its combination of symptoms resembling both Parkinson's and Alzheimer's for several generations
A great but teary read.more flag 9 likesLike see review View 2 comments These excursions are a useful reminder of both the ego-driven ambitions that so often propel scientific discovery (in this case, the payoff was two Nobel Prizes) and how remote such discoveries usually are from the development of effective treatments.Bill Baxleys four sons two of whom are physicians struggle to understand what happened to their father and to come to terms with their own inherited riskMore about badges Request a badge Post Recommended Washington Post reporters or editors recommend this comment or reader postHer emotions and the reactions of her family will stay with me for a long timeGajdusek deduced that the disease was transmitted during these rituals but how? The microscopic holes seen in the brains of kuru patients resembled those found in another rare disorder, Creutzfeldt-Jakob disease, and both illnesses began with trembling and loss of muscle controlHumans can acquire Creutzfeldt-Jakob disease from exposure to anbormally shaped PrP by eating beef from cattle with mad cow diseaseApparently the writer wanted to give a compassionate insight into the consequences of genetic disordersThey can't figure out what is wrong with him 48a4f088c3